gobletstahperb
New member
- Joined
- Jul 30, 2021
- Messages
- 2
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
I am going to link an imgur album to my test results and some conversation with my doctor.
Hi i am concerned that there is a possibility that i have bulbar ALS. I have been having issues for 4-5 months now. maybe longer im starting to realize i may have had issues for longer and havnt noticed them until they really started to impact me. Mostly my issues are with swallowing. Ive been told i have nonacid reflux, dysphagia, and ineffective esophageal motility. I am being referred to an ENT for my oral dysphagia, a neurologist, and rheumatologist. I am a 29 year old man. They wont really tell me what it could be other than it is hard to know for unspecific IEM, thats why they refer me to a neurologist because that could be the problem. I was confused by that and looked some stuff up. Surprise surprise, motor neuron disease seems to be the primary cause of these issues that is not stroke. Now i am afraid. I see the neurologist on the 24th so its kind of soon.
I keep trying to tell myself that im 29 and ALS is rare for my age. And it would appear that bulbar is the more rare form of ALS and it would appear that bulbar ALS is even more rare in the 25-40 age group than limb onset. But its not really helping, these problems im having are very real and they are starting to get concerning.
Is there a good possibility that my neurologist will tell me i have ALS...
Other symptoms that have been happening more recently
-throat clearing
-cough
-post nasal drip (saw an allergist who did a test that said i have no allergies)
-When i talk i am often told i sound like i have extra spit in my mouth and throat
-I often find myself breathing in saliva/liquids
Edit: i should note that some of the more severe problems like oral dysphagia have become much more pesrisent in the last 4 weeks.
Hi i am concerned that there is a possibility that i have bulbar ALS. I have been having issues for 4-5 months now. maybe longer im starting to realize i may have had issues for longer and havnt noticed them until they really started to impact me. Mostly my issues are with swallowing. Ive been told i have nonacid reflux, dysphagia, and ineffective esophageal motility. I am being referred to an ENT for my oral dysphagia, a neurologist, and rheumatologist. I am a 29 year old man. They wont really tell me what it could be other than it is hard to know for unspecific IEM, thats why they refer me to a neurologist because that could be the problem. I was confused by that and looked some stuff up. Surprise surprise, motor neuron disease seems to be the primary cause of these issues that is not stroke. Now i am afraid. I see the neurologist on the 24th so its kind of soon.
I keep trying to tell myself that im 29 and ALS is rare for my age. And it would appear that bulbar is the more rare form of ALS and it would appear that bulbar ALS is even more rare in the 25-40 age group than limb onset. But its not really helping, these problems im having are very real and they are starting to get concerning.
Is there a good possibility that my neurologist will tell me i have ALS...
Other symptoms that have been happening more recently
-throat clearing
-cough
-post nasal drip (saw an allergist who did a test that said i have no allergies)
-When i talk i am often told i sound like i have extra spit in my mouth and throat
-I often find myself breathing in saliva/liquids
Edit: i should note that some of the more severe problems like oral dysphagia have become much more pesrisent in the last 4 weeks.