loretta
New member
- Joined
- Jun 18, 2009
- Messages
- 8
- Reason
- Loved one DX
- Country
- US
- State
- AZ
- City
- Ganado
good day folks....have't written in a while, first off, God's Blessings with everyone living and fighting this horrible disease day by day....to catch up...my oldest brother diagnosed over 1 yr ago, he has quickly progressed, per wife, much weaker, but still fighting. My question is this....I have been told that his muscles are getting much weaker. He is still doing his PT, but, I worry about his breathing. I know he has refused 02 at night, I don't know how he feels about other interventions. How much more can his body handle without help? With this increase weakness, I fear the end may come soon. I am so scared, I live in AZ and he in Tx...I may be 39yrs old, but, he is still my big brother. My family won't tell me much when I ask them, so now I am reaching out to my ALS Family...what should be the next step? Words of wisdom will be greatly appreciated....I do try to prepare myself, however, that is so difficult. I wish we would all wake from this horrible nightmare. My Love and prayers to everyone fighting this battle....I pray that God will give us a cure soon....very soon. I apologize for the babbling on, but, my emotions as of recent are getting the best of me. Thank you all.