Status
Not open for further replies.

codya13105

Distinguished member
Joined
Aug 14, 2008
Messages
118
Reason
Learn about ALS
Country
US
State
florida
City
keystone heights
Do Breathing Problems Usually Come After Speech And Swallowing Problems?
 

kylisa

Distinguished member
Joined
Feb 11, 2008
Messages
195
Reason
Lost a loved one
Country
US
State
KY
City
Stanford
I can't answer for all but, my mother's breathing became a problem long after her speech issues had been an issue for a awhile.
 

hopealive

Active member
Joined
Sep 22, 2006
Messages
93
Reason
Lost a loved one
Country
US
State
OR
City
Albany
Everyone is different. My mother began with breathing difficulties and then went on to limb issues, then speech and swallowing, and is just now after 2 years dealing with breathing issues again. Sorry there aren't more definite answers for you.
Love,
Holly
 

codya13105

Distinguished member
Joined
Aug 14, 2008
Messages
118
Reason
Learn about ALS
Country
US
State
florida
City
keystone heights
Also it seems as if I am just waiting for weakness to happen...I see noticable thinning in my right bicep/shoulder, forearm, hand , hip, thigh....but still no real weakness....is this strange...?
 

BethU

Extremely helpful member
Joined
May 11, 2008
Messages
2,644
Reason
PALS
Diagnosis
05/2008
Country
US
State
California
City
Los Angeles
Cody ... one of the problems with comparing symptoms with others (The good old "I'll show you mine if you'll show me yours" :)) is that a) everybody really is different, that isn't just a slogan, and b) other people may have other health issues, and c) it simply doesn't matter, because every case of ALS really is different. Or did I say that already?

Short answer to your first question: In my case, serious breathing "issues" came before any other symptoms.

Correct answer to your first question: Serious breathing issues came before my ALS symptoms possibly because I also have heart disease. I was in the hospital having an angiogram to see what was behind my shortness of breath which had developed a couple months before, when the cardiologist poked a hole in an artery, and I had to have open heart surgery to repair it. Waking up from an induced coma three days later, I had slurred speech, blurred vision and still had the shortness of breath.

So ... was the shortness of breath the first sign of ALS? Who knows. Does it matter? I don't think so.
 
Last edited:

codya13105

Distinguished member
Joined
Aug 14, 2008
Messages
118
Reason
Learn about ALS
Country
US
State
florida
City
keystone heights
^^^i understand...then is it possible for someone to describe to me what it felt like when they started having breathing problems?
 

ktmj

Distinguished member
Joined
Oct 17, 2008
Messages
421
Country
US
State
Dixie
City
Redneck
I'm guessing that is going to be all over the board too. Some have said it was when they were trying to lie down prone and sleep, some started being winded doing normal everyday activities, etc.

Seems like we're all unique on this weird journey, even us undiagnosed'ed folks.

p.s. Know how to catch a rare wabbit? Unique up on it.;) OK, corny, but I gotta have distractions and humor is one of them, albeit lousy humor.
 

codya13105

Distinguished member
Joined
Aug 14, 2008
Messages
118
Reason
Learn about ALS
Country
US
State
florida
City
keystone heights
i feel like there is a lump in my throat...like tightness almost
 

BethU

Extremely helpful member
Joined
May 11, 2008
Messages
2,644
Reason
PALS
Diagnosis
05/2008
Country
US
State
California
City
Los Angeles
Hi Cody ... the shortness of breath feels like when you are winded after running. You're just not taking in as much oxygen as you need, but it happens when you have NOT been exercising. Sometimes it results in faster breathing like you're panting. The thing with breathing ... it leads to panic really quick. You can go 40 days without food, and maybe a few days to a week without water ... but only a few minutes without oxygen.

As to the lump in your throat, that is a classic anxiety symptom, also found in Benign Fasciculation Syndrome. As I understand it, it is not a symptom of ALS.
 

codya13105

Distinguished member
Joined
Aug 14, 2008
Messages
118
Reason
Learn about ALS
Country
US
State
florida
City
keystone heights
Thank You Very Much....i Appreciate It!
 

awieleba

Very helpful member
Joined
Apr 28, 2008
Messages
1,023
Country
US
State
michigan
City
oakland twp
Codya

as for the lump in your throat, I had that as well. I really did refuse to think that it could be anxiety. I had such an intense tight and lump feeling in my throat in the spring. After about a month or so on the lexapro, that lump thing did go away! It has been the only thing that has gone away!

I have the shortness of breath thing too. It was so bad that it happen while reading to kids at night. It now comes and goes. But I do have it. IT has gotten better and it has become alot less than in the spring.
The wierd thing for me is that it is better when I lay down. I know that alot of people get it worse when lying down and for me it is better when I lay down.

take care!
 

codya13105

Distinguished member
Joined
Aug 14, 2008
Messages
118
Reason
Learn about ALS
Country
US
State
florida
City
keystone heights
Thanks...just To Let You Guys Know I Uploaded Some Pics Of Me And My Fam. In My Profile If You Are Interested
 

awieleba

Very helpful member
Joined
Apr 28, 2008
Messages
1,023
Country
US
State
michigan
City
oakland twp
Codya

I saw your photo's! What a beautiful family! Your daughter is amazing and the holiday photo is just GREAT! You have a awesome family, hang in there!
 

codya13105

Distinguished member
Joined
Aug 14, 2008
Messages
118
Reason
Learn about ALS
Country
US
State
florida
City
keystone heights
Thanks You Guys....good To Know I Can Still Be Kinda Handsome Through All This Lol....and Thanks For The Nice Comments About My Family.
 

awieleba

Very helpful member
Joined
Apr 28, 2008
Messages
1,023
Country
US
State
michigan
City
oakland twp
See, that is the problem! We dont look sick so people dont get it! I think all of us on this forum or very good looking!
 
Status
Not open for further replies.
Top