RogerC53
Member
- Joined
- Feb 19, 2019
- Messages
- 14
- Reason
- DX MND
- Diagnosis
- 08/2019
- Country
- US
- State
- CA
- City
- Gilroy
I have recently been diagnosed with ALS/MND and currently having shortness of breath. It has gradually gotten worse over the last 3 weeks. I really don’t know if this is related to ALS/MND or something else. I will just be sitting and it feels like I just can’t catch my breath, like when you are really out of shape and climb some steep stairs. The shortness of breath comes on a little more frequently when I do lay flat on my bed. If I raise my bed it helps a little. I am also experiencing a lot more saliva in my mouth and have to spit it out. I do cough a little more than I use to but again don’t know what if any of this is related to ALS/MND.
Does this sound like complications of ALS/MND or something else? I am new to all of this and just don’t know what to expect.
If others with more experience could describe their breathing symptoms as they relate to ALS/MND it would help me a great deal.
They are scheduling some breathing test in December at Stanford for me.
I have an appointment in December with my specialist and have emailed him with my recent symptoms but he hasn’t gotten back to me yet.
Your knowledge is greatly appreciated,
Roger
Does this sound like complications of ALS/MND or something else? I am new to all of this and just don’t know what to expect.
If others with more experience could describe their breathing symptoms as they relate to ALS/MND it would help me a great deal.
They are scheduling some breathing test in December at Stanford for me.
I have an appointment in December with my specialist and have emailed him with my recent symptoms but he hasn’t gotten back to me yet.
Your knowledge is greatly appreciated,
Roger