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grounded

Active member
Joined
Sep 25, 2012
Messages
57
Reason
PALS
Diagnosis
12/2011
Country
US
State
PA
City
Baden
Kim -
My breathing %FCV hasn't really changed since diagnosis. I don't know the absolute volume values. FYI my FCV history is charted on PLM. I did find that the measurement is higher when I hold the device vs the nurse holding it for me. Also, over the years, different devices have been used & this also seems to sometimes make a difference.

My progression has been slow. I think continuing to work from diagnosis in 2011 until March of this year has helped slow progression. At my August clinic visit, they started me on exhalation exercises using the EMST 150. I'll find out during my February clinic if it's helping. Until this, I didn't do any breathing exercises.
 
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