Botox injections

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Idaho2790

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Dec 22, 2017
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150
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PALS
Diagnosis
01/2018
Country
US
State
Idaho
I have been having a very hard time with saliva. It has really gotten worse in the past 3 months. My neurologist at the ALS Clinic has given me two medications. One is a capsul and the other is drops under my tongue. They help, but very minimally. Her suggestion is to get Botox injections. Do other PALS have any thoughts on this solution?
 

dldugan

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Joined
Oct 5, 2018
Messages
203
Reason
PALS
Diagnosis
09/2018
Country
US
State
illinois
It is my understanding that you should not use Botox if you have ALS.
 

Idaho2790

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Joined
Dec 22, 2017
Messages
150
Reason
PALS
Diagnosis
01/2018
Country
US
State
Idaho
That was my thought too. The neurologist said it applied to those who could still eat and still speak. Side effects could cause problems with the throat. Since I can take absolutely nothing by mouth and haven’t spoken in three months, she feels that the injections would be ok. I’m still a little apprehensive.
 

debwilson77

Active member
Joined
Jan 10, 2016
Messages
58
Reason
CALS
Diagnosis
02/2016
Country
US
State
arizona
My husband gets them clenching his jaw and saliva, they help quite a bit.
 
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