- Joined
- Nov 3, 2015
- Messages
- 26
- Reason
- PALS
- Diagnosis
- 03/2015
- Country
- US
- State
- LA
- City
- New Orleans
Is Radicava turning out to be one of the biggest FDA Boondoggles ever? I am being hammered with phone calls and emails to sign up for this drug. My doctor believes there is not enough information yet. It seems strange to me the approval and distribution of this drug is based on an Asian study of as little as 60 people and ½ got the real drug. Seems like someone should interview those Asian’s in the study that took the drug ….what kind of success are those patients realizing today? Why is this not important?
I have not heard or read of one USA patient that has had any significant improvement. Everyone is looking for that improved patient……..Where are they? That would be some real ALS News.
I have not heard or read of one USA patient that has had any significant improvement. Everyone is looking for that improved patient……..Where are they? That would be some real ALS News.