bjd1
New member
- Joined
- Mar 3, 2009
- Messages
- 1
- Reason
- PALS
- Diagnosis
- 11/2008
- Country
- US
- State
- Arizona
- City
- Phoenix
Good Afternoon,
First just a little background, I ended up having my PEG procedure on the 11th of February this last month. Currently I consume about a gallon of water a day and 3 cans of formula, I also drink 3 milkshakes made with ensure. With the exception of speech, my right hand and arm have been the first to take a hit from this disease.
I am right handed and no longer can grab or lift anything with that arm. This brings me to my question. Do any of you feed yourselves? My wife currently manages my feeding times and she works 2 jobs and is in a masters program. As you might suspect, I really dislike having to tackle her at 6 in the morning and when she walks in the door after a long day. I am guessing that she does not like it either.
I am unable to hold the syringe, unclasp my hose and definitely struggle with the injection using the plunger. Determined to figure this out and look forward to any suggestions.
Thank you
Brian - Once a VERY "In your face" kind of guy. Now humbled by ALS.
First just a little background, I ended up having my PEG procedure on the 11th of February this last month. Currently I consume about a gallon of water a day and 3 cans of formula, I also drink 3 milkshakes made with ensure. With the exception of speech, my right hand and arm have been the first to take a hit from this disease.
I am right handed and no longer can grab or lift anything with that arm. This brings me to my question. Do any of you feed yourselves? My wife currently manages my feeding times and she works 2 jobs and is in a masters program. As you might suspect, I really dislike having to tackle her at 6 in the morning and when she walks in the door after a long day. I am guessing that she does not like it either.
I am unable to hold the syringe, unclasp my hose and definitely struggle with the injection using the plunger. Determined to figure this out and look forward to any suggestions.
Thank you
Brian - Once a VERY "In your face" kind of guy. Now humbled by ALS.