The more I read the official statements about ALS, the more I think it's all fiction. No pain? I wish they could experience a day in my body.
Regarding pee and poop. I have more issues with constipation than loss of bowel control and that worries me. For now, I can battle it with pure psyllium mixed with water and lots of magnesium. Benefiber did nothing for me nor did any other laxative. Drinking lots of water and the psyllium made it great. No diarrhea, no constipation. Psyllium bulks up very quickly so it has to be chased with 8 ounces of water fast and that doesn't sound like a sustainable solution when I get swallowing issues and especially peg tube.
I'm surprised women didn't add to this thread. Is it a male issue (bladder control) that really does point to something other than ALS or possibly the male anatomy?
At least you boys have the option of condom catheters. That's a great option when you want to go somewhere and not have to worry about getting to the bathroom. I get up 2 or 3 times a night to pee because I'm a heavy water drinker, especially in the evening. If I were a man, I'd be tempted to just use the condom catheter and stay in bed!