kevinw
Distinguished member
- Joined
- Apr 15, 2008
- Messages
- 203
- Reason
- DX UMND/PLS
- Diagnosis
- 01/2008
- Country
- US
- State
- PA
- City
- Poconos
Hi Everyone...I just want to check and see if anyone in our situation had any opinions on what the best BiPAP option or kind is? Last week at my last MDA clinic visit they said I need to consider getting one as soon as possible because I guess my Pulmonary Function Test results were "severe" (which doesn't make sense to me with PLS), but anyway they said I sould contact them to start the process. They also said I should get my Advance Directive/Living Will filled out and get them a copy (what the heck, this was just my normal three month visit).
Any advise, options, or information would be appreciated....Thanks.
PS: If anyone is thinking I stopped having EMG's after year four. They never showed lower involvement and I am in year six since diagnosed....so I'm not sure why the last visit was such a mess...lol
Any advise, options, or information would be appreciated....Thanks.
PS: If anyone is thinking I stopped having EMG's after year four. They never showed lower involvement and I am in year six since diagnosed....so I'm not sure why the last visit was such a mess...lol