Cherise77
Active member
- Joined
- Jun 18, 2018
- Messages
- 72
- Reason
- Loved one DX
- Diagnosis
- 07/2018
- Country
- CA
- State
- BC
- City
- Vancouver
My Dad has his first Respirologists appt today and is now very down as his breathing is not what he was hoping.
His FVC was 66%. He’s having some trouble getting a deep breath laying flat in bed and so she suggested a BiPap at night.
My question for anyone that is willing to share is are there other pALS that have had breathing issues when his only weakness is still right hand/arm?
He is nervous that the disease has jumped from his arm to his lungs when he thought that the lungs being compromised was something that happened last.
Any insight that I can pass on is greatly appreciated.
Thank you!
His FVC was 66%. He’s having some trouble getting a deep breath laying flat in bed and so she suggested a BiPap at night.
My question for anyone that is willing to share is are there other pALS that have had breathing issues when his only weakness is still right hand/arm?
He is nervous that the disease has jumped from his arm to his lungs when he thought that the lungs being compromised was something that happened last.
Any insight that I can pass on is greatly appreciated.
Thank you!