papaw50
Active member
- Joined
- Jun 19, 2006
- Messages
- 39
- Reason
- PALS
- Country
- US
- State
- West Virginia
- City
- Ravenswood
Hello,
My husband is considering going on a 4 day bike trip - annual event w/friends. His symptoms are still only in his hands/arms (weakness, twitching, motor skills) and fatigue. When he asked his dr about going, her comment was "don't push yourself". Our concern is - would taking this bike trip cause any add'l damage to his muscles? They ride about 10 hours a day. And, also - riding in the heat is a concern. He wants to go and has said all along, he is not going to let the diagnosed of als stop him from living. BUT, he doesn't want to contribute to the progression of the disease, either.
Any one out there with als still running marathons, or taking bike trips. etc.? Any advice would be appreciated!
Another concern: he's going for a 2nd opinion to a dr. in Pittsburg, PA on Aug 16th. The bike trip is planned for Aug 10-13 - just a few days before the appt. He doesn't want this bike trip to interfere, etc. with the emg the dr is doing on the 16th.
Learning to live with als is an adventure.
My husband said he feels like he is under a microscope because I watch every little move he makes and question anything out of the ordinary. ha!
Hope this finds each and every one having a wonderful day!
Thanks!
Patty
My husband is considering going on a 4 day bike trip - annual event w/friends. His symptoms are still only in his hands/arms (weakness, twitching, motor skills) and fatigue. When he asked his dr about going, her comment was "don't push yourself". Our concern is - would taking this bike trip cause any add'l damage to his muscles? They ride about 10 hours a day. And, also - riding in the heat is a concern. He wants to go and has said all along, he is not going to let the diagnosed of als stop him from living. BUT, he doesn't want to contribute to the progression of the disease, either.
Any one out there with als still running marathons, or taking bike trips. etc.? Any advice would be appreciated!
Another concern: he's going for a 2nd opinion to a dr. in Pittsburg, PA on Aug 16th. The bike trip is planned for Aug 10-13 - just a few days before the appt. He doesn't want this bike trip to interfere, etc. with the emg the dr is doing on the 16th.
Learning to live with als is an adventure.
My husband said he feels like he is under a microscope because I watch every little move he makes and question anything out of the ordinary. ha!
Hope this finds each and every one having a wonderful day!
Thanks!
Patty