powerpadman
Active member
- Joined
- Nov 30, 2023
- Messages
- 34
- Reason
- Loved one DX
- Diagnosis
- 11/2023
- Country
- US
- State
- WA
Here's a wild and crazy question: How can we, human beings, make and test a drug with ZERO interference from anyone? Rare diseases have so much stacked against them because they just don’t have the ability to make shareholders and companies money.
Here is a macro policy “big idea”: the FDA classifies a drug candidate as "preventative," "slows progression," or "curative." For curative medicines and therapies, those get a 7-day turnaround response from the FDA and the government pays out $5 billion to companies (tax-free) that actually cure diseases. We could also designate ten university hot spots that have the world's greatest expertise in those rare diseases. Those programs would get funded $100s of millions annually to work in three teams (8 hours x 3 each day). They would work around the clock to find cures.
We give away billions if not trillions to other governments to fight wars, but can’t fund rare diseases and find cures. What's it going to take?
Here is a macro policy “big idea”: the FDA classifies a drug candidate as "preventative," "slows progression," or "curative." For curative medicines and therapies, those get a 7-day turnaround response from the FDA and the government pays out $5 billion to companies (tax-free) that actually cure diseases. We could also designate ten university hot spots that have the world's greatest expertise in those rare diseases. Those programs would get funded $100s of millions annually to work in three teams (8 hours x 3 each day). They would work around the clock to find cures.
We give away billions if not trillions to other governments to fight wars, but can’t fund rare diseases and find cures. What's it going to take?