Bi-Brachial Onset ALS

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lrspeed

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My 87 year old father-in-law was diagnosed in January. His symptoms presented in the arms and his doctors have described his type of ALS as bi-brachial. He would like to speak to someone who had a similar diagnosis, bi-brachial (aka man-in-the-barrel) ALS. His symptoms have progressed, but only in the arms. Thanks for any guidance and the help.
 

lgelb

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Very sorry to hear about your FIL. My husband had that variant, also known as "flail arm." It can also be called "bibrachial" or "brachial" amyotrophic diplegia. That variant can either progress slowly to "regular" ALS, or in some people, it stays pretty much in the arms. Let us know what other questions you may have.

Best,
Laurie
 

lrspeed

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Thank you, Laurie. Would you be available to have a phone conversation with him? Because of his age, online isn't ideal. Can you share how your husband's progressed?
 

lgelb

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Of course, bearing in mind everyone is different. I will PM you.
 
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