beginning foot drop

[IsabelKulla]

I want to greet you here in the community.
You are wonderful people. Lots of love with you.

My name is Isabela, I am 37 years old, I am the mother of three children (the youngest daughter is one year old)

Since 2019 I have been dealing with neurological problems (I have several MRs, blood tests, MEPs and several EMGs) I have visited a neuromuscular specialist (EMG) twice in our country, always without findings (clean)

Forward-forward last year I have a "problem" with the right foot/leg.The feeling that I'm limping, I'm pulling my leg behind me - the feeling that it's not in sync with my left leg.

In recent days, I've found that I'm stumbling the toe of the shoe to the ground.
I pull my fingers along the sidewalk, the feeling that the thumb part of the sole is "sticking" to the ground (as if I had a strong adhesive tape there and it stuck to the ground)I feel this mainly in sneakers. Less or not at all in ballerinas, slippers.I'm still concentrating on my right leg. On how I put my foot on the ground, etc.
I have pain and stiffness behind the knee, my foot hurts, my fasciculations are on the top of the foot and the little finger of the foot(exten.did.brevis)

I'm afraid it's a beginning foot drop(weakness in ALS)

My last EMG was only on my right leg on April 16. I can easily run, jump, dance,ride a bike. Go on my heel and toe.Climb the stairs.

I live in fear that this is the beginning of the als that the emg has not yet caught((

I developed a phobia of walking (shopping, walking)
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Please- this is how foot drop starts-when is walking a problem but running isn't it?

Thank you.I really appreciate your time answering.

 

[Nikki J]

If you can go on your heel it doesn’t sound like foot drop. The fact that you can run is also good news. Things that require more strength and effort wouldn’t be easier. Please visit your doctor and get examined again

 

[affected]

The EMG wasn't done too early. I can see how very anxious you are so really encourage you to return to your doctor and talk about your concerns and fears very openly. All the best

 

[IsabelKulla]

Thank you very very much...Affecta and Nikki


I can´t shake the feeling that despite a clean EMG ,Idon´t have ALS...

I´m terrible scared because of my little kids.
I was at the neuro on April 16,he did an EMG(3 muscles on the R leg) and X-ray of my R hip(there is a slight osteoarthritis),I wear my daughter on my R side every day.

I have feeling that otherwise I will stepon my thumb,so I will rub my R shoe on the ground

Should I go to the neuromuscular doctor again?next EMG?

I´m sorry I ask very stupidly

 

[affected]

No go back to your doctor and explain your fears. We cannot help you or reassure you, so please don't keep posting here.

I'm so sorry, we truly can't help further as we are dealing with the terminal illness ALS here. You have many fears, these can be helped by a doctor.

 

[IsabelKulla]

Greetings to all members of this group.

Thank you from the bottom of my heart for your feedback.

With permission, I still ask, can the drop of a toe be the beginning of a foot drop?
My point is that I have drag to toe on my right leg, but I can run without problems, jump with children on a trampoline, jump up one leg on the stairs, balance, lift toes and heels.If I walk on the grass or terrain I don't feel it but as soon as I walk on the sidewalk I feel my toe to drag (I don't feel it when I walk at home)
My clinical trial and EMG a month ago in this leg was without a finding.

For a year, I felt like I was limping on this foot, now it turned into draged my toe/s.

I'm sorry ... that I ask so many.Please don't be mad at me ...
I'm really desperate

Thank you

 

[Clearwater AL]

Isabel...

"My clinical trial and EMG a month ago in this leg was without a finding."

That should pretty much should clear your thoughts of ALS.

Most of all... a clinical trial and an EMG. Almost the gold standard to rule
out ALS.

You've gone from...
"The feeling that I'm limping, I'm pulling my leg behind me - the feeling
that it's not in sync with my left leg." now to just your toe.

But...
"I can run without problems, jump with children on a trampoline, jump
up one leg on the stairs, balance, lift toes and heels."

If you continue to work with your doctors... they will find the cause
why your toe is numb.

Hope your concerns are resolved soon so you can enjoy your family
and shake that feeling of being desperate with a health concern.

 

[IsabelKulla]

My doctor doesn't deal with it anymore ...
Instead of walking, I often run so I don't feel this" drag "feeling.
I cry a lot, I don't sleep, I don't eat ... but this is inappropriate for you (I apologize for my words)
I also read here that foot drop can start like this ...
I just don't know if I would feel it during other activities (bike, running, trampoline)
I wish you so much strength, be careful - you are a great community.

 

[Nikki J]

I am sorry you are having so much difficulty. There is truly nothing we can do for you. You don’t believe your doctors you don’t believe us when we say you are not describing foot drop as we know it. I don’t know if you can see another doctor if your gp is not helpful but your answer isn’t going to be here. If you need emotional support ask for counseling. Whatever is or isn’t wrong with you that is what you are asking for here and we can not give. There are also facebook groups for undiagnosed people and forums for those worried about their health.

 

[IsabelKulla]

Have a nice day everyone is. I wanted to show you what my shoes and soles(Rfoot-P)look like after walking. My leg feels so stiff ... I can barely drag it. But I can still run, jump and dance. My stomach doesn't eat for the third day ... fear has completely overwhelmed me!

I apologize for my inquiries towards you, please excuse me. Just let me know who experienced what I did! Is this a foot drop?
including shooting pain (knee) Achilles stiffness.

 

[Nikki J]

Maybe ask to see a podiatrist or a physiotherapist ? There is, as I said, nothing we can do for you. Closing thread please do not start another unless you have a diagnosis of something to share. Good luck