Becca15
Member
- Joined
- Jun 15, 2021
- Messages
- 25
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- UK
- City
- Halifax
I posted on here with my symptoms previously. I was dismissed by many.
I’ve seen a lot of people on this forum get dismissed like I did only later to get a diagnosis. I will not be coming on here for advice anymore as the attitude of some has put me off. It’s left a very bad taste in my mouth with some of the responses I previously had and I’m not the only one to have had this sort of response. What happened to “be kind”?
Some people on this forum need to show more compassion. EMG’s can be normal in the beginning BTW. Widespread twitching isn’t normal at all.
I’ve been referred to ALS Clinic with suspected ALS.
Bladder weak, abdomen weak, 2 dirty EMG’s (PSW, reduced recruitment, instability, fasc potentials) muscle loss in face, voice affected, choking on saliva, spasms, cramps and Atrophy. I was told by people on here to see someone for my anxiety and that my symptoms sounded nothing like ALS!!!!!!!!!!
Kindness and compassion don’t cost anything.
I’m so sorry for all affected by this disease.
God Bless
I’ve seen a lot of people on this forum get dismissed like I did only later to get a diagnosis. I will not be coming on here for advice anymore as the attitude of some has put me off. It’s left a very bad taste in my mouth with some of the responses I previously had and I’m not the only one to have had this sort of response. What happened to “be kind”?
Some people on this forum need to show more compassion. EMG’s can be normal in the beginning BTW. Widespread twitching isn’t normal at all.
I’ve been referred to ALS Clinic with suspected ALS.
Bladder weak, abdomen weak, 2 dirty EMG’s (PSW, reduced recruitment, instability, fasc potentials) muscle loss in face, voice affected, choking on saliva, spasms, cramps and Atrophy. I was told by people on here to see someone for my anxiety and that my symptoms sounded nothing like ALS!!!!!!!!!!
Kindness and compassion don’t cost anything.
I’m so sorry for all affected by this disease.
God Bless