Thank you all for your kind words and prayers. Tom was laid to rest yesterday with a beautiful service attended by so many friends and family. We will miss him, and pray pray pray for a cure to be found.
Beachgirl - I am so sorry for your loss and I am trying to send you a "virtual hug" via the network. This disease is devastating, esp. when onset is bulbar and so progressively fast. I hope that your love did not struggle for long, and I wish you peace. LOVE & hugs!