Sundaymorning
New member
- Joined
- Jul 4, 2020
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NC
- City
- Raleigh
Hi All,
I really didn’t want to post here yet because I know it’s not fair to PALS to answer to “worried” people. To be honest I don’t even know what I’m seeking by posting because I know I will just have to wait for the results from my doctor. Appreciate anyone responding to my story...
I’m a 28 year old female. my first symptoms started back in May. With just an 24/7 right eye twitch. Thought nothing about it, everyone gets those. Well it continued for a month and a half.And while working remote during the COVID-19 I noticed muscle twitches on my right leg so I wondered if it could be a pinched nerve so reached out to my GP. They wanted to do an EMG. Didn’t know what that was so I looked it up (which was a terrible decision so that’s when the anxiety set in). Of google mentions ALS and that was my first time really researching it other than the ice bucket challenge (which I will now fully support ALS in every way I can) The muscle twitches became body wide so I knew that could be my anxiety. Same with the lump in my throat, I also knew that could be anxiety so I didn’t even bring that up to the neurologist.
I have muscle cramps in my calves, feet and hands. I didn’t have any signs of weakness, but they did perform the EMG on my left side (leg, arm, back). Which was clear and put me more at ease. However the throat issues continued and my facial twitches (lip,jaw,cheek) became much worse. I started feeling like I had twitches inside of my throat which Was a really odd feeling. Trouble swallowing but never choking. I would get food stuck in my throat and would find some tiny pieces coming back up later. I develop forehead spasms, which are the most intense twitches i get. My entire face will tighten and the entire forehead contracts and It effects both eyes (which I know is not very typical of ALS). I have hoarness at random times. I’ve only had 4 choking episodes where liquid has gone down the wrong way but didn’t put them together because they’ve happened so far apart (it’s not like every day).
so the reason I’m posting and have become scared in the last few hours is because I had a Barium Swallow Test. The results show that I have mild Dysmotility. Basically it would take an additional swallow for me to clear the contrast in my esophagus. They haven’t really explained to me what the Dysmotility means because my GP wants to wait to put the pieces together because they’ve schedule another EMG for the bulbar region. I just know that means my muscles or nerves in my throat aren’t working properly.
I really didn’t want to post here yet because I know it’s not fair to PALS to answer to “worried” people. To be honest I don’t even know what I’m seeking by posting because I know I will just have to wait for the results from my doctor. Appreciate anyone responding to my story...
I’m a 28 year old female. my first symptoms started back in May. With just an 24/7 right eye twitch. Thought nothing about it, everyone gets those. Well it continued for a month and a half.And while working remote during the COVID-19 I noticed muscle twitches on my right leg so I wondered if it could be a pinched nerve so reached out to my GP. They wanted to do an EMG. Didn’t know what that was so I looked it up (which was a terrible decision so that’s when the anxiety set in). Of google mentions ALS and that was my first time really researching it other than the ice bucket challenge (which I will now fully support ALS in every way I can) The muscle twitches became body wide so I knew that could be my anxiety. Same with the lump in my throat, I also knew that could be anxiety so I didn’t even bring that up to the neurologist.
I have muscle cramps in my calves, feet and hands. I didn’t have any signs of weakness, but they did perform the EMG on my left side (leg, arm, back). Which was clear and put me more at ease. However the throat issues continued and my facial twitches (lip,jaw,cheek) became much worse. I started feeling like I had twitches inside of my throat which Was a really odd feeling. Trouble swallowing but never choking. I would get food stuck in my throat and would find some tiny pieces coming back up later. I develop forehead spasms, which are the most intense twitches i get. My entire face will tighten and the entire forehead contracts and It effects both eyes (which I know is not very typical of ALS). I have hoarness at random times. I’ve only had 4 choking episodes where liquid has gone down the wrong way but didn’t put them together because they’ve happened so far apart (it’s not like every day).
so the reason I’m posting and have become scared in the last few hours is because I had a Barium Swallow Test. The results show that I have mild Dysmotility. Basically it would take an additional swallow for me to clear the contrast in my esophagus. They haven’t really explained to me what the Dysmotility means because my GP wants to wait to put the pieces together because they’ve schedule another EMG for the bulbar region. I just know that means my muscles or nerves in my throat aren’t working properly.
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