barbarassister
New member
- Joined
- Sep 19, 2019
- Messages
- 7
- Reason
- Loved one DX
- Diagnosis
- 06/2017
- Country
- US
- State
- NC
- City
- Winterville
Hi! I am brand new to this forum. I've been trying to find the correct place in which to start. My sister's husband has rapidly-advancing ALS He was diagnosed in Summer 2017. Two years ago this fall, he only had a barely perceptible limp. Today he is completely disabled. My sister (& best friend) is his only caretaker....his choice. We are stuck on two issues that need to be somehow resolved, and are looking for viable suggestions. First, (and please excuse me for this) butt wiping. He WILL NOT let her see him naked, although they've been married for 35 years. So, that being said, does anyone know of a device that would work ergonomically (his hands barely function) and for the obvious (Charmin style). Second, his gag reflex is at a point now where almost anything (it changes minute to minute) causes him to gag violently when ingested. He's lost and continues to lose a lot of weight. He drinks a lot of Boost and protein shakes, sometimes gagging on even those. We, my husband, I, and my sister are working together to help them (him) in any way possible. Thank you in advance for any help /suggestions you can offer.