Ericalyn
Member
- Joined
- Feb 4, 2019
- Messages
- 18
- Reason
- Learn about ALS
- Diagnosis
- 12/2018
- Country
- US
- State
- AL
- City
- Calera
Hello everybody, I have a question that I felt like couldn't be answered in the Stickies.
For about 3 weeks I have had issues where I am walking, and if I do a quick turn on one leg, I stumble a bit. I have gotten out of bed at night to have my legs shake uncontrollably, or I stumble around the room. I always feel unsteady.
Is this a sign of clinical weakness? I do not ever feel dizzy, it's just like my body won't work with me. I have had a clean MRI and talked to a neurologist about my concerns. She will not take me seriously because she says I'm only 30, and the only people who get ALS that young are familial ALS status or were in the military. That does not seem to be true from posts I have seen on here.
I have read it's about completely failing at something, but I have also talked to people where they said their strength just went down gradually and was very subtle.
I've had the myoclonic jerks (I don't know if that's a symptom) and I've also had the fasciculation, which brings me to another question. I went from having twitches 24/7 to only having a few a day. Can this happen in ALS? Also, is it possible to feel deep aches as a result of progression of symptoms?
Thank you for taking the time to read. God Bless
Erica
For about 3 weeks I have had issues where I am walking, and if I do a quick turn on one leg, I stumble a bit. I have gotten out of bed at night to have my legs shake uncontrollably, or I stumble around the room. I always feel unsteady.
Is this a sign of clinical weakness? I do not ever feel dizzy, it's just like my body won't work with me. I have had a clean MRI and talked to a neurologist about my concerns. She will not take me seriously because she says I'm only 30, and the only people who get ALS that young are familial ALS status or were in the military. That does not seem to be true from posts I have seen on here.
I have read it's about completely failing at something, but I have also talked to people where they said their strength just went down gradually and was very subtle.
I've had the myoclonic jerks (I don't know if that's a symptom) and I've also had the fasciculation, which brings me to another question. I went from having twitches 24/7 to only having a few a day. Can this happen in ALS? Also, is it possible to feel deep aches as a result of progression of symptoms?
Thank you for taking the time to read. God Bless
Erica