mamaoftwo
Distinguished member
- Joined
- Aug 16, 2007
- Messages
- 224
- Reason
- Other
- Country
- US
- State
- NY
- City
- larchmont
I too am confused. Less than 2wks ago, you had a NM specialist tell you that you did not have ALS and did not need a muscle biopsy. Now, you have been told its an "aggressive form of ALS leaving you with months to live". I don't understand. Did the doctor do a u-turn o you? What happened? It seems incredible to go from such strong reassurances of "NO ALS" to your talking about ending your life - all in a little over 10 days.
If you haven't got an official diagnosis (and even if you have), don't give up yet. Many posters have told you that there are other explanations for your symptoms and while it is very frightening to face the prospect of ALS, it is also frightening to hear a young person talk of suicide.
I wish you the best in getting to the bottom of your medical issues and continue to hope for you that it is not ALS after all.
If you haven't got an official diagnosis (and even if you have), don't give up yet. Many posters have told you that there are other explanations for your symptoms and while it is very frightening to face the prospect of ALS, it is also frightening to hear a young person talk of suicide.
I wish you the best in getting to the bottom of your medical issues and continue to hope for you that it is not ALS after all.