zoohouse
Senior member
- Joined
- Jan 14, 2013
- Messages
- 959
- Reason
- CALS
- Diagnosis
- 07/2012
- Country
- CA
- State
- B.C.
- City
- Salmon Arm
So Tim had his pulmonary function test and was told he was functioning at 36%. I am so disappointed, and I can see the hurt in his eyes. We still haven't seen the Respiratory specialist, so I am hoping that he will have some good advice. I guess the DPS is out of the question, but will be looking into the Sip & Puff ventilator, as Tim has very strong muscles in his face. Yesterday when spitting his toothbrush water out, he nearly shoot the spit basin out of my hand. I am going to take that as something very positive.
One that note I will ask for prayers that we can find something to help him, and also to give me the strength to be the best support there for him. I left our home town Sunday night at 1:30am and drove the 7 hours to get him to Seattle in time for morning rounds. I was shaking I was so tired, and did stop once, have way along to take a nap. I was suppose to have a room at the Fisher house when I got here, but there wasn't one. I ended up staying in the room with Tim. They had brand new alternating air mattresses, but I must say that they were as hard as a rock, and I certainly didn't feel any alternating going on. I asked for a different mattress for Tim as he can't move in bed. I would like to know who is getting the kick backs for buying these beds, and would suggest that all the administrators sleep one night on their back on one, no turning allowed.
Well I shall get back to Tim, and see what else they have in store. He did get his teeth cleaned yesterday, and all looks very good. Also has gained 9 lbs. since July, so his diet is obviously working. His blood pressure is up, but I think that is because of him working so hard to breath.
Thanks all
Paulette
One that note I will ask for prayers that we can find something to help him, and also to give me the strength to be the best support there for him. I left our home town Sunday night at 1:30am and drove the 7 hours to get him to Seattle in time for morning rounds. I was shaking I was so tired, and did stop once, have way along to take a nap. I was suppose to have a room at the Fisher house when I got here, but there wasn't one. I ended up staying in the room with Tim. They had brand new alternating air mattresses, but I must say that they were as hard as a rock, and I certainly didn't feel any alternating going on. I asked for a different mattress for Tim as he can't move in bed. I would like to know who is getting the kick backs for buying these beds, and would suggest that all the administrators sleep one night on their back on one, no turning allowed.
Well I shall get back to Tim, and see what else they have in store. He did get his teeth cleaned yesterday, and all looks very good. Also has gained 9 lbs. since July, so his diet is obviously working. His blood pressure is up, but I think that is because of him working so hard to breath.
Thanks all
Paulette