fatherof4
New member
- Joined
- Jun 4, 2011
- Messages
- 2
- Reason
- Learn about ALS
- Country
- CA
- State
- Qc
- City
- Mtl
Hi,
I am scarred to death and mainly looking for similar stories to know how they usually end...
2 months ago, a nice DR told me I might have a brain tumer pressing against my eye causing glaucoma damage. Two days, after getting this IRM, my twitchting started in my right calve, a week later, it was in my foot and its now everywhere and almost constant in my feet.
I went to see a neuro (who is specialised in Neuromuscular diseases) and went through a complete neurological exam which was fine... Normal reflexes, no atrophy, no apparent weakness... As I was still a bit scarred and was exeriencing a lost of endurance and little muscle pain, he offered me to go through an EMG to secure me (he was sure I didn't have ALS).
I went to my EMG yesterday, the nerve conduction study was good but the neuro found anomalies in my right arm (he only tested my right leg (which was fine) and this arm). For these 2 muscles, he found fibs+1 in four locations, abnormal insertion activity in 1, fasciculation in 1 and reduced recruitement -1 one time.
Prior to this, for my left eye problems, I've been screened for a ton of diseases, blood tests came back normal, no syphilis, ANA normal,CRP normal and much much more... The MRI of my brain also came back normal.
After all of this, he first said it was not ALS but after asking him what could cause these abnormal results, he said that it might be the begining of ALS. He works at the ALS clinic of the hospital. He also said the damage to my arm happened recently (!?) and didn't test the other limbs.
The neuro now wants a lumbar puncture and an MRI of my spine.
2 months ago, I was in perfect shape and now, my arms and legs always feel weird to me... and I feel like I can hold my kids less longer (but this is not an objective proof and it could be caused by anything according to Dr.
I'm 33 years old.
Could it be something else ?
Altough it all started (fasciculations), in my right leg, the emg in that leg came back normal... How can this be ?
Thanks to those who will answer and/or take time to read this
I am scarred to death and mainly looking for similar stories to know how they usually end...
2 months ago, a nice DR told me I might have a brain tumer pressing against my eye causing glaucoma damage. Two days, after getting this IRM, my twitchting started in my right calve, a week later, it was in my foot and its now everywhere and almost constant in my feet.
I went to see a neuro (who is specialised in Neuromuscular diseases) and went through a complete neurological exam which was fine... Normal reflexes, no atrophy, no apparent weakness... As I was still a bit scarred and was exeriencing a lost of endurance and little muscle pain, he offered me to go through an EMG to secure me (he was sure I didn't have ALS).
I went to my EMG yesterday, the nerve conduction study was good but the neuro found anomalies in my right arm (he only tested my right leg (which was fine) and this arm). For these 2 muscles, he found fibs+1 in four locations, abnormal insertion activity in 1, fasciculation in 1 and reduced recruitement -1 one time.
Prior to this, for my left eye problems, I've been screened for a ton of diseases, blood tests came back normal, no syphilis, ANA normal,CRP normal and much much more... The MRI of my brain also came back normal.
After all of this, he first said it was not ALS but after asking him what could cause these abnormal results, he said that it might be the begining of ALS. He works at the ALS clinic of the hospital. He also said the damage to my arm happened recently (!?) and didn't test the other limbs.
The neuro now wants a lumbar puncture and an MRI of my spine.
2 months ago, I was in perfect shape and now, my arms and legs always feel weird to me... and I feel like I can hold my kids less longer (but this is not an objective proof and it could be caused by anything according to Dr.
I'm 33 years old.
Could it be something else ?
Altough it all started (fasciculations), in my right leg, the emg in that leg came back normal... How can this be ?
Thanks to those who will answer and/or take time to read this