jonico
Distinguished member
- Joined
- Feb 21, 2017
- Messages
- 157
- Reason
- Lost a loved one
- Diagnosis
- 12/2014
- Country
- US
- State
- NY
- City
- Central
Al is right Jselliott, you seem to be expecting to find therapists and doctors here. The moderators and numerous others are very knowledgeable and very kind and gracious with their time, but it is too much to expect them to be both your therapist and your virtual neurologist. Find someone to really talk to about this and let your doctors handle the medical advice.
You must find a way to stop worrying and start living. You've been here for a year, and there is every indication that you've let this take over your life.
My wife first noticed something was wrong in July of 2014 and visited her PCP about a month later since her arm wasn't improving. She saw a local neurologist a couple times in October. She was referred to Columbia in NYC for an initial consult in November and returned for further tests before getting the official diagnosis 12/30/14. I tell you this because even though she grew increasingly concerned those six months, she simultaneously became increasingly determined to live like before or even more fully, if at all possible and for as long as possible. I was sorting digital photos earlier tonight and I was blown away at how much living we packed into the two years between when she first noticed something amiss and when ALS really started to more substantially impact her mobility in the later months of 2016. There were a lot of smiles in those photos.
I know everyone is different and I can tell you have some serious anxiety and it isn't easy for you. But I have to believe, based on everything you've shared so far, your anxiety is far more likely to take you down than ALS.
Seriously...redirect the the energy you expend spinning your wheels here "gaining knowledge" toward enjoying life...talk to a professional about your anxiety...and let Doctors be your Doctors. I sincerely hope you can find some peace.
Jon
You must find a way to stop worrying and start living. You've been here for a year, and there is every indication that you've let this take over your life.
My wife first noticed something was wrong in July of 2014 and visited her PCP about a month later since her arm wasn't improving. She saw a local neurologist a couple times in October. She was referred to Columbia in NYC for an initial consult in November and returned for further tests before getting the official diagnosis 12/30/14. I tell you this because even though she grew increasingly concerned those six months, she simultaneously became increasingly determined to live like before or even more fully, if at all possible and for as long as possible. I was sorting digital photos earlier tonight and I was blown away at how much living we packed into the two years between when she first noticed something amiss and when ALS really started to more substantially impact her mobility in the later months of 2016. There were a lot of smiles in those photos.
I know everyone is different and I can tell you have some serious anxiety and it isn't easy for you. But I have to believe, based on everything you've shared so far, your anxiety is far more likely to take you down than ALS.
Seriously...redirect the the energy you expend spinning your wheels here "gaining knowledge" toward enjoying life...talk to a professional about your anxiety...and let Doctors be your Doctors. I sincerely hope you can find some peace.
Jon