- Nov 26, 2019
- Learn about ALS
I’m not even sure where to start I’m just so terrified. I’ll start with saying I appreciate everyone’s time and effort to share wisdom and knowledge with me. I’ve had a very uneven back muscle for possibly a year now, not 100% sure. I just noticed it one time and it has just continued to vanish as time has gone on, despite my working out and weight training. I’ve also had fasciculations that started out of nowhere about a year ago as well. You name the spot, it’s twitched and tremored. I went to a neaurologist and they did an emg about a year ago that they said was ok, and just recently did he recognize the one sided back muscle atrophy and sent me for an mri. He said the mri looked ok and hasn’t had anything to offer me since, but all the while my right side of my back is diminishing and I feel it’s also in my shoulders and hands. I even have indentations on that side where there is just no muscle there. I don’t know where to turn or what to do. I have 4 young kids and am terrified of the possibility of als. I tried getting into Mayo to be seen but they denied me, my docs here are no help and I just don’t know what’s happening to me and where to turn. Anyone have any ideas or advice? I live in the Midwest and just don’t know if this is als or not.