Danijela
Senior member
- Joined
- Dec 3, 2008
- Messages
- 667
- Reason
- PALS
- Diagnosis
- 11/2008
- Country
- UK
- State
- UK
- City
- Bolton
I was wondering what it was like living with ALS 10, 20, 30, 40 years ago, what was available in terms of support equipment and general managing of the condition. Some of you with familial 'type' may have experienced it with your parents or other family members. I imagine that the provision was pretty poor.
I have read somewhere that holistic approach to care, multidisciplinary teams and technological advances together contribute to a greater quality of life and survival than percentages involved in the licensed drug (Rilutek).
Additionally, I imagine a number of differences existing across different countries, in terms of access to specialist ALS clinic, treatment etc. Do you guys in the States have to pay for Rilutek?
Danijela
I have read somewhere that holistic approach to care, multidisciplinary teams and technological advances together contribute to a greater quality of life and survival than percentages involved in the licensed drug (Rilutek).
Additionally, I imagine a number of differences existing across different countries, in terms of access to specialist ALS clinic, treatment etc. Do you guys in the States have to pay for Rilutek?
Danijela