morningdew
Active member
- Joined
- Apr 22, 2010
- Messages
- 50
- Reason
- PALS
- Country
- AUS
- State
- WA
- City
- WA
Hello, everyone. Well, here I am, having finally had the tests I've waited three months for. The emg was "I don't see anything that convinces me you have als - any abnormalities could be put down to your age". MRI was OK. The neurologist, who specializes in motor neuron disease, showed concern about my continuing symptoms, cramps, fasciculations, dropped left foot, arm weakness, but said he could make no diagnosis at this time and to see him again in six months. I expect he wants to see if the symptoms progress.
This is more or less what I had expected, after reading all your posts. I understood before I went in that diagnosis was a long drawn-out process.
Having just been through all this, there's a comment I want to make in defence of all those who have clean emg's but find it difficult to believe they don't have als. I've been curious about my own reactions and have been trying to analyze them - why didn't I feel more relief? I think it's that with such a long wait for the tests, we spend a lot of time trying to protect ourselves from a bad diagnosis by preparing ourselves for the worst. (I learned all about bi-paps, pegs, etc!) When you're told you don't have it, it takes some mental adjustment. It's really odd! I find it's taken me a few days to realize I can start planning ahead again.
So it looks as if I am one of the lucky ones. Even if it's something progressive, it doesn't appear to be als!
I thank you all so much for all the information I have received on this site, and for the understanding I now have of als, and of how so many of you find ways to beat it, in mind if not in body.
Love to all, Joan
This is more or less what I had expected, after reading all your posts. I understood before I went in that diagnosis was a long drawn-out process.
Having just been through all this, there's a comment I want to make in defence of all those who have clean emg's but find it difficult to believe they don't have als. I've been curious about my own reactions and have been trying to analyze them - why didn't I feel more relief? I think it's that with such a long wait for the tests, we spend a lot of time trying to protect ourselves from a bad diagnosis by preparing ourselves for the worst. (I learned all about bi-paps, pegs, etc!) When you're told you don't have it, it takes some mental adjustment. It's really odd! I find it's taken me a few days to realize I can start planning ahead again.
So it looks as if I am one of the lucky ones. Even if it's something progressive, it doesn't appear to be als!
I thank you all so much for all the information I have received on this site, and for the understanding I now have of als, and of how so many of you find ways to beat it, in mind if not in body.
Love to all, Joan