comfortable with ALS
Distinguished member
- Joined
- Sep 24, 2007
- Messages
- 111
- Reason
- Other
- Diagnosis
- n/a
- Country
- US
- State
- mi
- City
- st.clair shores
Hello everyone its Jenny just wanted to let everyone no how it went today at docs. He def saw my twitching. Checked reflexes. strength etc. He told me he didnt think it was Als but i will continue to see hem I will be getting a blood test that will be sent to the mayo clinic to check for potassium, i hope iam saying that right, other things to lymes. He told me out of a 1000 patients he has only 2 came to him with just twitching then later turned to als, so yes there are those rare cases. I told him about this forum and asked him if he thought i was crazy like a lot of people on here think i am and he told me absolutley not. He told me to help everyone i can and talk about my problems.His name is Dr.newman at henry ford hosp. in Mi very good doc works with als patients only. So i will continue to stay on and let everone no how my condition presents. He told me usually its like weakness associated with twitching what a lot of you on here have stated. I could go on ans on about today but i dont want to bore anyone thanks a lot jenny