Hithro
New member
- Joined
- Jun 9, 2017
- Messages
- 9
- Reason
- Learn about ALS
- Country
- US
- State
- Georgia (GA)
- City
- Savannah
Hello everybody,
Last time I posted, I was concerned about possible bulbar als and told that my symptoms did not sound like ALS and to come back after I have seen my neurologist. Well my neurologist happens to be part of my family and I have recently spoken with her.
Although it make me happy to hear her say that I did not sound like an ALS patient because I have no slurring or a "bulbar voice", I tried telling her about my arising symptoms and was dismissed as I am no longer even being taken seriously. I have developed sleep apnea over a very short period of time and wake up and random times and random days with a gasp or snort for breath. When i mentioned this to my neuro she did not even bat an eye as I am just being looked at as a crazy person now.
Upon my return home, my mother said that I should not worry anymore about ALS or I would be removed from college as we cannot even afford getting an EMG to dispel my fears. My sleep apnea has not gone away and I cannot sleep lying flat. I cannot go to any doctors or say anything about my health anymore as I will not be heard. I am going nuts with fear as I have seen articles of people having sleep apnea as a very early symptom of ALS, but there is nothing I can do about it. I would appreciate any opinions or information on sleep apnea, as this site and the kind, helpful members of it seem to be the only way I can get a solid opinion right now. It has come to a point where I have accepted that if I am dying of ALS there's nothing I could do anyway, and am watching my breathing get worse in silence as I get fatigue and drowsiness during the day because of the sleep apnea.
Any thoughts or comments are appreciated as this has caused me a lot of stress, and I would like to know if it sounds like any initial ALS cases anybody has heard before (the article where i read about apnea as a very early symptom was on als.net). I am only 18 years old and really want to do a lot with my life, I am strongly hoping it is not cut short. Thank you for your time and help
Last time I posted, I was concerned about possible bulbar als and told that my symptoms did not sound like ALS and to come back after I have seen my neurologist. Well my neurologist happens to be part of my family and I have recently spoken with her.
Although it make me happy to hear her say that I did not sound like an ALS patient because I have no slurring or a "bulbar voice", I tried telling her about my arising symptoms and was dismissed as I am no longer even being taken seriously. I have developed sleep apnea over a very short period of time and wake up and random times and random days with a gasp or snort for breath. When i mentioned this to my neuro she did not even bat an eye as I am just being looked at as a crazy person now.
Upon my return home, my mother said that I should not worry anymore about ALS or I would be removed from college as we cannot even afford getting an EMG to dispel my fears. My sleep apnea has not gone away and I cannot sleep lying flat. I cannot go to any doctors or say anything about my health anymore as I will not be heard. I am going nuts with fear as I have seen articles of people having sleep apnea as a very early symptom of ALS, but there is nothing I can do about it. I would appreciate any opinions or information on sleep apnea, as this site and the kind, helpful members of it seem to be the only way I can get a solid opinion right now. It has come to a point where I have accepted that if I am dying of ALS there's nothing I could do anyway, and am watching my breathing get worse in silence as I get fatigue and drowsiness during the day because of the sleep apnea.
Any thoughts or comments are appreciated as this has caused me a lot of stress, and I would like to know if it sounds like any initial ALS cases anybody has heard before (the article where i read about apnea as a very early symptom was on als.net). I am only 18 years old and really want to do a lot with my life, I am strongly hoping it is not cut short. Thank you for your time and help