JAM
Distinguished member
- Joined
- Aug 21, 2024
- Messages
- 173
- Reason
- CALS
- Diagnosis
- 00/0000
- Country
- US
- City
- Racine
Hi all,
I know this may seem like I’m going down a rabbit hole, but here goes… my PAL’s has pernicious anemia. Was dx 7 years ago. He received weekly shots up until about 3-4 years ago (I’d have to double check that) when Dr said high dose methyl chewables daily were effective to maintain his level. He takes 1000 mcg chewable daily that he orders on line. He has had annual b12 levels checked in blood where level shows within norm so GP thinks all is fine. However (Altho I probably shouldn’t have), I’ve read a couple studies where the blood test can show normal level even if depleted esp in someone whose body is unable to absorb b12 and is taking high dose oral daily (My PAL’s).
I’m not looking for B12 answers, here is my problem. we have asked our GP to go back to shots and he refuses without blood work, which as I said could be inaccurate (maybe not but I’d like to try just in case his is wrong) We’d really just like to get the prescription and do the shots at home (sister is nurse so can administer). Any help in how to get a prescription. It’s for B12, not some hard narcotic and he has a documented condition for it. It may make no difference, but we would like the chance to try.
Ty for listening to my babble.
I know this may seem like I’m going down a rabbit hole, but here goes… my PAL’s has pernicious anemia. Was dx 7 years ago. He received weekly shots up until about 3-4 years ago (I’d have to double check that) when Dr said high dose methyl chewables daily were effective to maintain his level. He takes 1000 mcg chewable daily that he orders on line. He has had annual b12 levels checked in blood where level shows within norm so GP thinks all is fine. However (Altho I probably shouldn’t have), I’ve read a couple studies where the blood test can show normal level even if depleted esp in someone whose body is unable to absorb b12 and is taking high dose oral daily (My PAL’s).
I’m not looking for B12 answers, here is my problem. we have asked our GP to go back to shots and he refuses without blood work, which as I said could be inaccurate (maybe not but I’d like to try just in case his is wrong) We’d really just like to get the prescription and do the shots at home (sister is nurse so can administer). Any help in how to get a prescription. It’s for B12, not some hard narcotic and he has a documented condition for it. It may make no difference, but we would like the chance to try.
Ty for listening to my babble.