Thanks for sharing, you are always so open and caring. In regards to you progressing. Do you think that you had this for awhile, when you were being treated for sojorns? Meaning that maybe your progression has been slow if you have had this for years and will continue to be.
My twitching is alittle like yours. When I lay in bed and my legs are against each other or the bed, I feel them firing off. I have seen only a few times of movement. When I sit outside with kids, I am always lookimg at my legs and dont see constant movement. I think that is the one thing that keeps me going.
I do agree about weakness first. I feel your weak when you cant do the things you use to and I cant. My docter says it is because I have not used my muscle and they are out of shape. I think that is lame. I have periods in my life where I have been sick and not worked out for extended periods of time. When I went to work out, I could do it but maybe not finish. WHen I try now, I cant even go 5 minutes. IN my kitchen I noticed it too, I use the same big pans I always have ( I love cooking and having a glass of wine) and I have noticed the pans seem to be heavy like my wrist is gonna give out or I have to use 2 hands.
anyway, sorry to ramble.
best wishes to us all! Happy~~~~over the next 2 weeks just over focus on your kids, that helps me.
Once again, you are such a calming force! You are right about the symptoms coming on, they seem slow to me but really, I was very active last june/july. It is so hard to tell because of the pregnancy and colon infection.
I have to tell you Rose that I had a funny dream about you. I have always had very vivid dreams about anything and everything that I see or do in a day. Well, after seeing your photo's on here, I had a dream that I came to NJ to see you. In the dream, I brought my "spriited" son. We came in and you had all these antique's and my son was crashing into them and breaking everything! Them I took him into your bathroom for a time out (which in the dream looked like a palace) and he pooped all over the room. In the dream I was horrifed! It was sooo funny! But the best part was that I felt like I met you. It would be so nice if we all really could go our and have a drink and hug!
Anyway, it was funny.
talk to you soon....