Awaiting on what my body does

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Sjb

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Feb 8, 2020
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Learn about ALS
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Country
UK
State
BC
City
Newcastle
Hi,
sorry not really sure what to say or where to start. I’m 34 year old female with daily frequent stuff happening.
I was diagnosed with FND last year where my body just stopped, legs went weak and heavy and then arms and speech. I got left arm weakness and fatigue but that seemed to have gone on it’s own apart from the weakness in my arm.
I reliased looking back at images that my left shoulder had dropped a few year before and left leg skinner than right. I did have knee problems for years and just got told was muscle weakness and physio to strengthen it.
I did have cramp in my bum and legs during the night and wake up with dead legs and pain which woke me for a few months before this but put it down to RSL.
Over the last year my left arm is becoming weaker to the point where I can not hold a frying pan or shopping bag with barley anything in it for long. Even holding my daughters hand waking down the stairs I get tired and burning feeling.
I have atrophy in left leg/foot - toes starting to curl and flat food happening and also bum cheek.
I have slight atrophy in right foot and cramps in calf started only recently. Also twitching in bum and thighs after I walk and sit down.
Right arm is skinner than left but left is weaker and started to have soft muscles in left arm. Right hand more atrophy and started to develop spilt hand and dents in both hands.
Post nasal drip and fatigue.
EMG was done end of last year on all four limbs and showed clean.
Just wanted some opinions as feel like I’m going crazy and try to rationalise things and think EMG was clean can’t be just then more atrophy happens and weakness progresses and mind wanders back.
 

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There are excellent doctors in the UK for FND. If you have not been seen by an FND specialist you should be. I know people have been seen out of their cachement areas for this. Untreated or undertreated FND can wreak havoc so it is important to pursue this

there are fnd support groups on FB including one specific to the UK

i don’t think you need to worry about MND. It is not possible to evaluate pictures properly. You need to go back to the doctor and be properly evaluated and if the answer is still FND you need to pursue it before it ruins your life.
 
Thank you for that. I’m on FND hope but have a review app supposedly in the next month or so but with everything going on I have a feeling will be delayed which I get.
Just don’t understand why I have atrophy happening all over my body and quick and isn’t a FND symptom which dr noted. Just feel like I get on a level and more stuff happens and quickly. Thank you for reaching out really does help.
 
In ALS atrophy doesn't happen quickly. It's an ongoing progressive process by which unused muscles lose their tone. It usually doesn't happen all over a body unless the person is paralyzed all over the body. A clean EMG will rule out ALS because nerve death occurs before failure and atrophy. My first doctor was shocked when he saw my EMG after testing my strength. He didn't expect an EMG classic for ALS because I was still strong, especially my lower body. He did see atrophy in my left hand and shoulder but he suspected it was caused by underuse because I had a badly torn rotator cuff.

Glad your EMG was clean. Good luck.
 
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