Thank you lgelb. The GI specialist didn’t think GERD was causing my SOB or my swallowing issues.
He wants to do EGD for structural possibilities lower down esophagus since my modified barium swallow came back normal he said I could be feeing issues swallowing up in my throat but coming from lower down?I couldn’t get in until 6/8 for EGD.
He mentioned could be issues with esophagus motility too but have to do EGD first.
The fact that lying down has gotten more uncomfortable breathing wise worries me. That is new. Also pulmonologist had me do sleep study( home one) I’m waiting on those results now.
Also lately my middle back between my shoulder blades feels..,, only way I can describe is straining feeling like the muscles are working hard in that area to keep my posture and I get burning tingling across that area of my back.
And now my legs feel weaker ( neuro did not find clinical weakness) more R leg then left but it feels like it’s my whole leg starting at the top down. Weird feeling. Almost like my leg is unstable. This started like 2-3 weeks ago but seems worse now.
I’m starting to get pretty worried actually. I know my odds of having ALS in general are unlikely and respiratory onset in a female who is 43 yo is even more unlikely for that kind of onset but I feel like I have all those same symptoms. Sometimes though I think maybe I don’t want to know either just want someone to tell me this is all in my head.
I’ve also lost 36 lbs in 4 months but maybe stress I hope.
I feel like I have done so much testing are there any others you could think of that I am missing? They have ruled out like every pulmonary disease, auto immune, heart issues.
Thank you Clear water, I need to get the EMG from my neuro. He didn’t give me a copy when it was done. He just said it looked completely normal and that he didn’t even catch a fasiculation. Only thing was sensory in the NCS that showed carpal tunnel in my R hand I’ll post it when I get it from him.
Should I ask to be referred to a neuromuscular specialist to test stomach ir back? Redo the EMG with this neuro? Let this go and wait and see what happen s?