Atrophy + Twitches (UPDATE)

[Nikki J]

You r report clearly states the pattern is that of inflammatory myopathy. This is completely different than that of ALS. The fibs are not specific to ALS.

You need to follow with your doctor who may suggest a muscle biopsy

Your emg has ruled out ALS and your answer is elsewhere. Best of luck

 

[Bestfriends14]

OK, I am a bit confused, your EMG report says inflammatory myopathy in the conclusion soooo why does that scare you? Do you really think that if you had ALS the doctor would merrily send you on your way without saying anything? This is your second clean EMG and your second thread on the forum. Since you have been told several different ways that you do not have ALS, you can finally stop chasing and obsessing over it and move with what actually ails you, which is not ALS.

Good luck to you in the future and take good care.

 

[KarenNWendyn]

Inflammatory myopathies are not ALS. There are different types, the most common being polymyositis and dermatomyositis. A muscle biopsy is generally done to distinguish among the various types. Most are treatable.

Myopathies are usually managed by neuromuscular specialists or rheumatologists. But you don’t need to be here. I’m glad you have something that has the potential for treatment. You are very fortunate.

 

[DoctorR2D2]

I was scared because of the alteration in recruitment, fibs,etc. Along with the persistent fine twitching and the fact I've started to drop thing with my hands. But I'll guess I have to seek a neuromuscular specialist to confirm the diagnosis (I doubt my neurosurgeon could sort this out). I really hope it's the treatable myopathy.

Thanks for all your answers, specially Dr. Karen, Bestfriends, ThroughThatValley, Al, all of you. I keep all of you and your loved ones in my prayers.

I sincerly hope to never comeback. (Except maybe for make a heartfelt donation to the site)