mimi0727
New member
- Joined
- Dec 30, 2008
- Messages
- 5
- Reason
- Learn about ALS
- Country
- US
- State
- PA
- City
- Reading
Hi all,
I read so many queries on here about twitches/fasiculations and although I've experienced them for over a year and they can be disconcerting or uncomfortable,frankly, they are the least of my problems. The weakness, loss of function, mobility and independence and atrophy are much harder to deal with. My shoulder started wasting first, it is now very visible through clothing.The left shoulder angles down from the neck with the shoulder rolling forward and now the arm has rotated and there is muscle loss on my back at the shoulder and arm pit area. My left hand was next and is now flat with sunken in areas between thumb and index finger, base of thumb and palm.The thumb is now at a strange angle.Fine coordination and pincher grasp are difficult.I practice picking up buttons, coins, cheerios and pick-up sticks to work on dexterity.My left foot now has sunken in between between big and 2nd toe, base of all toes, tendons stand out and heel. The sole of my foot looks like it was scooped out.Limited ankle movement and big toe, cannot spread or curl other 4 toes. I'm sure this is what effects my balance. Any recommendations for braces, supports, aids, or supplements to help with the cramping of foot and hand? I am using a cane presently, the chiro recommended a walker because of loss of balance, but I found it harder on my left shoulder, any suggestions? My next neuro visit is Feb. 9th and I plan to ask for PT or OT. As always, thank you for any suggestions.
Blessings,
mimi
I read so many queries on here about twitches/fasiculations and although I've experienced them for over a year and they can be disconcerting or uncomfortable,frankly, they are the least of my problems. The weakness, loss of function, mobility and independence and atrophy are much harder to deal with. My shoulder started wasting first, it is now very visible through clothing.The left shoulder angles down from the neck with the shoulder rolling forward and now the arm has rotated and there is muscle loss on my back at the shoulder and arm pit area. My left hand was next and is now flat with sunken in areas between thumb and index finger, base of thumb and palm.The thumb is now at a strange angle.Fine coordination and pincher grasp are difficult.I practice picking up buttons, coins, cheerios and pick-up sticks to work on dexterity.My left foot now has sunken in between between big and 2nd toe, base of all toes, tendons stand out and heel. The sole of my foot looks like it was scooped out.Limited ankle movement and big toe, cannot spread or curl other 4 toes. I'm sure this is what effects my balance. Any recommendations for braces, supports, aids, or supplements to help with the cramping of foot and hand? I am using a cane presently, the chiro recommended a walker because of loss of balance, but I found it harder on my left shoulder, any suggestions? My next neuro visit is Feb. 9th and I plan to ask for PT or OT. As always, thank you for any suggestions.
Blessings,
mimi
