Chimmy
New member
- Joined
- Jul 14, 2021
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
Hi everyone. I am a 27F from the UK. I am currently very confused over some symptoms I have been experiencing recently.
So a little background, I had surgery on my foot 2 years ago where a large vein on the top of my foot was removed. After that surgery I had a large scar visible on the top of my foot which had sunken in a little bit. Fast forward to now and I believe the skin on the foot has sunken in even more than before. I was looking at my feet the other day when I noticed that when I flex my toes upwards even just a little bit fasciculations are visible under the skin on the top of my foot and can be felt when touched. The twitching won’t stop until I have completely relaxed the muscle.
I have kept an eye on it for about a week and the muscle still twitches wildly as soon as I activate the muscle. It hasn’t become less or gone away. I can’t think of any reason why the muscle would be doing this every time I activate it apart from this disease.
I went and saw a neurologist today and explained to her what was going on. Unfortunately I am living in another country at the moment and I was unable to speak the doctors language so had to have my boyfriend translate for me. She checked my body out and couldn’t find any weakness, or strange reflexes. I showed her my foot and got her to feel the muscles. She told me that it was my heartbeat, which it 100% was not.
I asked her again and again to feel it but she said that the muscle there is very far under the skin so I wouldn’t feel it anyway, which was a weird thing to say. She also told my boyfriend and I that ALS always starts in the tops of the arms or legs, which I am pretty sure is untrue as I thought most peoples starts with their hands or feet.
I currently have no muscle weakness in the feet that I can tell of, it’s just the fasciculation and atrophy. I don’t know what to do. I keep telling myself I should just wait and see what happens, but I’m driving myself insane not knowing what is causing the twitching. If it was all over my body I wouldn’t be worried, but it’s one muscle that only does it when it is used.
So a little background, I had surgery on my foot 2 years ago where a large vein on the top of my foot was removed. After that surgery I had a large scar visible on the top of my foot which had sunken in a little bit. Fast forward to now and I believe the skin on the foot has sunken in even more than before. I was looking at my feet the other day when I noticed that when I flex my toes upwards even just a little bit fasciculations are visible under the skin on the top of my foot and can be felt when touched. The twitching won’t stop until I have completely relaxed the muscle.
I have kept an eye on it for about a week and the muscle still twitches wildly as soon as I activate the muscle. It hasn’t become less or gone away. I can’t think of any reason why the muscle would be doing this every time I activate it apart from this disease.
I went and saw a neurologist today and explained to her what was going on. Unfortunately I am living in another country at the moment and I was unable to speak the doctors language so had to have my boyfriend translate for me. She checked my body out and couldn’t find any weakness, or strange reflexes. I showed her my foot and got her to feel the muscles. She told me that it was my heartbeat, which it 100% was not.
I asked her again and again to feel it but she said that the muscle there is very far under the skin so I wouldn’t feel it anyway, which was a weird thing to say. She also told my boyfriend and I that ALS always starts in the tops of the arms or legs, which I am pretty sure is untrue as I thought most peoples starts with their hands or feet.
I currently have no muscle weakness in the feet that I can tell of, it’s just the fasciculation and atrophy. I don’t know what to do. I keep telling myself I should just wait and see what happens, but I’m driving myself insane not knowing what is causing the twitching. If it was all over my body I wouldn’t be worried, but it’s one muscle that only does it when it is used.
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