Rhonda Kim
Member
- Joined
- Jul 10, 2008
- Messages
- 19
- Reason
- CALS
- Diagnosis
- 07/2008
- Country
- US
- State
- Ohio
- City
- Cincinnati
Hi Everyone Do any of you know how low a persons fvc can go. My husband has the bulbar form and his breathing is at 23fvc. He is very weak but still cares for all his own needs. He just doesn't want to get out of bed. He says he thinks it is depression. I'm not to sure. He refuse to go back to doctor. He wears his bipap most of the time. I can see him struggle really bad when he takes it off for more than 1/2 hour or so. In the last 2 to 3 weeks he has started writing most everthing down. It just takes to much for him to talk. When he does talk I only undestand about 10% of it. If he would get that H1n1 we know it would only be a mater of a few hours. To here him tell it ,it's all Lou's fault.
Thanks for listening, Rhonda
Thanks for listening, Rhonda