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Will

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Joined
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81
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PALS
Diagnosis
11/2010
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US
State
AZ
City
Cottonwood
After 2 1/2 years of ALS with no progression beyond the original presentation, our ALS doc said the Jim had 'arrested' ALS which is very rare. He does have the weakness, fasics, etc that originally brought him to ALS, but they have not progressed beyond the original diagnosis state! (legs, feet, fingers, hip flexors). His EMG's are the same if not better than at diagnosis, and his clinical features and strength tests are also the same.

The doc said this is very rare, and there is no explanation for it. Jim will still be monitored at clinic, and they want him in the bio-marker research study which he has been in for the last 6 months. But we are very happy!

I hope this can give some hope to the newly diagnosed.

We did change our life radically when diagnosed, and addressed stress, diet, exercise, activities, supplements, etc in a strategy to battle this horrific disease.

I would be happy to send anyone the regimen that we are on if the Private Message me.
 

Nikki J

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Mar 22, 2012
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9,649
Reason
PALS
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04/2014
Country
US
State
MA
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Boston
Will I am so happy for you and Jim. Whatever the reason this is wonderful! Thank Jim for doing the biomarkers. Wishing you many happy years together
Nikki
 

ottawa girl

Moderator emeritus
Joined
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1,506
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Diagnosis
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Ontario
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I am beyond thrilled for you Jim! That's so amazing. I've read about arrested progression, and pray that it happens more often.

Woohoo!
 

Barbie

Extremely helpful member
Joined
Dec 29, 2007
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2,659
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Lost a loved one
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That is fantastic !

I hope the two of you enjoy this gift and live life to the fullest! :D
 

dbltree

Distinguished member
Joined
Jan 3, 2013
Messages
217
Reason
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Diagnosis
01/2013
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US
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Iowa
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Will;273016 We did change our life radically when diagnosed said:
Sweet! Those are all positive things that quite frankly...most of us should been doing pre-ALS. Best of luck and God bless!
 

Wjjsb

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Mercer
Fantastic! That does give hope that it is possible! Thank you so much for sharing your absolutely positive encouragement! Enjoy your time together!
 

Nighthawk

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PALS
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12/2011
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US
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Anne Arundel Co
Glad to hear this!
Thanks a lot for sharing this with us.
That gives us some hope or light at the end of the tunnel.


Carlos
 

Txgirl

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Messages
354
Reason
PALS
Diagnosis
04/2013
Country
US
State
Texas
City
000
That is wonderful news! He has been given a second chance. Thank you for sharing and it gives us all hope :D
 

dbltree

Distinguished member
Joined
Jan 3, 2013
Messages
217
Reason
PALS
Diagnosis
01/2013
Country
US
State
Iowa
City
Birmingham
Thanks for sending the info Will, it's encouraging to know Jim and I are doing nearly the same things!
 

JTorm

Active member
Joined
Jun 7, 2013
Messages
39
Reason
Learn about ALS
Country
PTY
State
Panama
City
Panama
hey dbltree, how you doing with the progression of the disease...?

I hope the diet and sups have helped you.
 

LinCan

Active member
Joined
Sep 25, 2012
Messages
67
Reason
PALS
Diagnosis
08/2013
Country
CA
State
Ontario
City
Sault Ste. Marie
Will, I'm so happy that you have good news to post! I think you have likely brightened so many Pals' days, and given hope. Could you please PM me with more details?
Thanks again and continued success!

Linda
 

KissJ

Distinguished member
Joined
Jul 6, 2011
Messages
376
Reason
Loved one DX
Diagnosis
05/2011
Country
US
State
Pennsylvania
City
Greensburg
This is the best news I have seen here in, well, forever! And, this is what I wanted so much for my husband but never received that miracle. You are receiving a miracle! God Bless You...and thank God!
 

Al fox

Active member
Joined
Aug 11, 2012
Messages
35
Reason
PALS
Diagnosis
06/2011
Country
Cad
State
Ontario
City
Toronto
Will

I'm sorry if I have not sent this message privately, I'm afraid I'm not sure how to do that. I would very much like to know about the regime that you and your partner have established. Please drop me a line when you can.

Regards,

Alan
 

Al fox

Active member
Joined
Aug 11, 2012
Messages
35
Reason
PALS
Diagnosis
06/2011
Country
Cad
State
Ontario
City
Toronto
Will, can you let me know more about Jim's regime?

Regards,

Alan
 
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