BarryG
Extremely helpful member
- Joined
- Nov 19, 2008
- Messages
- 3,000
- Diagnosis
- 02/2008
- Country
- CA
- State
- Alberta
- City
- Hinton
Hello everyone, as most of you know my problems have been mostly bulbar up until the last few months but I have been experiencing increasing arm weakness in the last month or so and an unusual symptom. When I go to do a feed I get ready with the syringe barrel in the peg tube and then when I go to pour the water in for a flush it is all I can do to lift the water bottle high enough to pour it into the syringe. The formula box is the same thing, it is all I can do to lift an 8oz tetrapack box to pour it.
Ok, so I am having arm problems but the strange thing is once I am done pouring the formula in and go to do the water bottle for a flush the water bottle is as light as a feather! It is not just that the bottle is a little lighter, everything feels lighter! I know that my metabolism has always made my energy level be really closely related to my food intake but this is ridiculous. I guess I just need to eat all the time. :shock::shock:
Ok, so I am having arm problems but the strange thing is once I am done pouring the formula in and go to do the water bottle for a flush the water bottle is as light as a feather! It is not just that the bottle is a little lighter, everything feels lighter! I know that my metabolism has always made my energy level be really closely related to my food intake but this is ridiculous. I guess I just need to eat all the time. :shock::shock: