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Arimoclomol

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Emanol

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Hello,

My father is considering applying for the Arimoclomol Phase III study in Madrid. Since we are new to this, I had some questions:

1) How promising has Arimoclomol been? Browsing, I was surprised to find that an earlier trial was done 10 years ago (!). Is that timing normal? Why so long between the two?

2) Would you think that it is worth traveling to another city to participate?

I know they are hard questions but would appreciate some guidance in the dark.

Best,
E.
 

Nikki J

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Emanol

Active member
Joined
Apr 3, 2018
Messages
60
Reason
Loved one DX
Diagnosis
09/2017
Country
SP
State
NY
Thank you for answering.

I am not sure, but we might as well give it a try. They are asking only for clinically possible according to El Escorial, not probable, so I think our neurologist could make the case.

Do you know how regularly one is supposed to attend the medical center? It was unclear to me looking at the instructions.

E.
 

Nikki J

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7,364
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PALS
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Clinically possible means meeting El escorial in one body area ( such as legs, arms or bulbar). Probable is 2 areas, definite 3.

I don’t know the frequency. I do know people traveled for the sod1 trial
 
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