Natewheel
New member
- Joined
- Dec 4, 2020
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- TX
- City
- Dallas
Hello,
Thank you first of all for allowing this type of discussion on your forum. I did read the thread ahead of time discussing the disease and it's symptoms. But I am having a lot of worry in my case and would still like to hear other opinions based on experiences. I am a 33 yr old male who has always been very active. Although covid has changed that this year.
I'll jump right into the symptoms I'm currently having now for about a month. I started with a specific muscle twitching in my arm very rapidly for about a week. Was worried and went to doc thinking I have als or ms. They said not to worry als starts in the legs and works is way up (I know isn't true) Then I developed terrible internal tremors that could not be seen but felt like my body was vibrating throughout the entire day and made sleeping very hard as well. I started getting other twitches all over my body but the bicep stopped. That was in my right arm. Now I have a lot of them all over in my legs, butt, arms, sides, stomach, and even near my temples. My mouth now twitches every time I open it or smile. It is very concerning and my tongue doesn't feel right and wants to push in between my teeth. I have also had random acid reflux that was severe and started last year and it's affected my voice. I have shaky hands and finger tremors. The original doctor told me to look into thoracic outlet syndrome because my arms go numb when I sleep a lot of times but not sure how that affects my face and everything else. She said it looked like my thenar had some atrophy so of course I look that up and it's common with ALS. My legs and arms muscles quiver and shake when flexing then in certain positions as well. It is hard for me to say how much weakness I have now because for 9 months now I've been working from home and changed my lifestyle completely. I used to workout and play basketball but due to not feeling well and other foot and knee injuries also on my left side I haven't been. I sit at home and barely go out. But I do feel very shaky now. I was leaning over to adjust the water in my shower and noticed both of my leg muscles going crazy and shaking.
I saw a neurologist who just said I need to be tested and I'm scheduled for all of the MRIs, emg, etc. But I am wanting to know if this sounds common for it to affect so many different areas of my body all at once? It does seem a lot of it is more prevalent on my left side. My wrists pop and grind so much now. And the facial symptoms at very troubling. Any thoughts on this are greatly appreciated. Thank you in advance.
Thank you first of all for allowing this type of discussion on your forum. I did read the thread ahead of time discussing the disease and it's symptoms. But I am having a lot of worry in my case and would still like to hear other opinions based on experiences. I am a 33 yr old male who has always been very active. Although covid has changed that this year.
I'll jump right into the symptoms I'm currently having now for about a month. I started with a specific muscle twitching in my arm very rapidly for about a week. Was worried and went to doc thinking I have als or ms. They said not to worry als starts in the legs and works is way up (I know isn't true) Then I developed terrible internal tremors that could not be seen but felt like my body was vibrating throughout the entire day and made sleeping very hard as well. I started getting other twitches all over my body but the bicep stopped. That was in my right arm. Now I have a lot of them all over in my legs, butt, arms, sides, stomach, and even near my temples. My mouth now twitches every time I open it or smile. It is very concerning and my tongue doesn't feel right and wants to push in between my teeth. I have also had random acid reflux that was severe and started last year and it's affected my voice. I have shaky hands and finger tremors. The original doctor told me to look into thoracic outlet syndrome because my arms go numb when I sleep a lot of times but not sure how that affects my face and everything else. She said it looked like my thenar had some atrophy so of course I look that up and it's common with ALS. My legs and arms muscles quiver and shake when flexing then in certain positions as well. It is hard for me to say how much weakness I have now because for 9 months now I've been working from home and changed my lifestyle completely. I used to workout and play basketball but due to not feeling well and other foot and knee injuries also on my left side I haven't been. I sit at home and barely go out. But I do feel very shaky now. I was leaning over to adjust the water in my shower and noticed both of my leg muscles going crazy and shaking.
I saw a neurologist who just said I need to be tested and I'm scheduled for all of the MRIs, emg, etc. But I am wanting to know if this sounds common for it to affect so many different areas of my body all at once? It does seem a lot of it is more prevalent on my left side. My wrists pop and grind so much now. And the facial symptoms at very troubling. Any thoughts on this are greatly appreciated. Thank you in advance.