Jackfishem
Member
- Joined
- Dec 29, 2015
- Messages
- 22
- Reason
- Lost a loved one
- Diagnosis
- 12/2014
- Country
- US
- State
- LA
- City
- Lake Charles
I have been waiting for weeks to get mom in to see a local pulmonologist. I spoke with his scheduler today and she says, "Can y'all come in tomorrow at 1:30?" Duh, of course we can!
Now I'm freaking out because I have no clue what kind of questions to ask. I gave the scheduler mom's history plus they have her records from her hometown pulmonologist. Mom had a CT scan of her chest in November, so they will also have access to that scan and report.
I suppose with the FTD-ALS diagnosis, I'll need to ask him what signs of deterioration to look for (mom is already short of breath with minimal exertion and she already uses a CPAP at night). I'll ask if there are any medications we need to start or stop. I'll ask if there are any other treatments we need to look into. I'll find out if he has any experience with ALS or with the combination of FTD and ALS.
What am I missing? Please help! Thanks!
Now I'm freaking out because I have no clue what kind of questions to ask. I gave the scheduler mom's history plus they have her records from her hometown pulmonologist. Mom had a CT scan of her chest in November, so they will also have access to that scan and report.
I suppose with the FTD-ALS diagnosis, I'll need to ask him what signs of deterioration to look for (mom is already short of breath with minimal exertion and she already uses a CPAP at night). I'll ask if there are any medications we need to start or stop. I'll ask if there are any other treatments we need to look into. I'll find out if he has any experience with ALS or with the combination of FTD and ALS.
What am I missing? Please help! Thanks!