Teej
Active member
- Joined
- Sep 28, 2006
- Messages
- 39
- Reason
- Loved one DX
- State
- CA
- City
- San Jose
Hi all,
I am just writing to ask for prayers from those of you who are willing. Tomorrow we go see the pulmonologist for my husband. Four months ago, his lung capacity was about 38%, and they told us that if, by the next appointment it was below 30%, that we needed to consider the trach/vent. He has continually deteriorated in every way in the last four months, requiring his bi-pap, pretty much all the time. He is very weak and is starting to swell in his feet and legs. His voice is weak (although he still manages to deliver his "one-liners"), and he chokes frequently. He has the PEG already, and takes all of his meds and fluids through it. He still manages to eat when he isnt' too tired, and that brings him a lot of joy. His legs are virtually useless now, and his arms are not far behind. He is so precious to me, and never forgets to thank me at night before he drifts off to sleep. I will be honest, I am scared about this appointment....so please, if you think of us tomorrow, I would appreciate it.... Much love and prayers for all of you very brave people, Teej
I am just writing to ask for prayers from those of you who are willing. Tomorrow we go see the pulmonologist for my husband. Four months ago, his lung capacity was about 38%, and they told us that if, by the next appointment it was below 30%, that we needed to consider the trach/vent. He has continually deteriorated in every way in the last four months, requiring his bi-pap, pretty much all the time. He is very weak and is starting to swell in his feet and legs. His voice is weak (although he still manages to deliver his "one-liners"), and he chokes frequently. He has the PEG already, and takes all of his meds and fluids through it. He still manages to eat when he isnt' too tired, and that brings him a lot of joy. His legs are virtually useless now, and his arms are not far behind. He is so precious to me, and never forgets to thank me at night before he drifts off to sleep. I will be honest, I am scared about this appointment....so please, if you think of us tomorrow, I would appreciate it.... Much love and prayers for all of you very brave people, Teej