LouLou
Active member
- Joined
- Jul 11, 2011
- Messages
- 91
- Reason
- DX UMND/PLS
- Diagnosis
- 06/2011
- Country
- US
- State
- Washington
- City
- Woodinville
Diagnosed in June 2011. I had 3 appointments at the University last week. First one was for physical therapy, second one was to meet with a nurse to get more educated on PLS, and the third was a pulmonary function test. The PT thinks that it would be a good idea to get a walking stick to use when I encounter times when I feel I may not have the balance to get me somewhere. Otherwise my legs are still pretty strong. She also mentioned possibly getting a brace to help with the foot drop. The visit with the nurse was quite overwhelming and was glad my husband was with me. I asked about going off of Baclofen as it hasn't done much for me after being on it for 2 1/2 months. So I am weaning myself off and will see how I feel. Just can't see taking a drug when there is no apparent benefit. The pulmonary function test went well. The technician said for a 53 year old, my lung capacity was at 112% of the norm. He asked me if I sang or played a wind instrument? I said no, but maybe it's from screaming at my 9 siblings during my childhood! All in all the appointments went well. I have many mixed emotions right now... from sadness, to being mad, to feeling strong, etc. I am also going to join Weight Watchers this week and get these 30 extra lbs. off of me. I am concerned about falling (I have a few times) and the extra weight is not good. So I'm really going to try to get the weight off and exercise (treadmill and stretching). Many blessings to you all. LouLou