- Mar 30, 2019
Thanks for checking in Michael. I think there are forum restrictions on exchanging phone numbers. Let’s ask a moderator (Nikki?) the best way for four or five of us to exchange numbers and coordinate a conference call. Thanks, KevinHi Kevin and melab,
I’m finally checking back in here and I can identify with the feeling of still being in shock and how alone this disease can make you feel. If you all felt like doing a phone conference call at some point to discuss these feelings, I’d be open to that. Or if you wanted to do it online we could use a portal such as Patients Like Me or exchange emails. Let me know if any of those options might work.