Anyone healed from ALS or have stories of recovery

TruthPrevails

New member
Joined
Jun 21, 2022
Messages
2
Reason
PALS
Diagnosis
03/2019
Country
CA
City
Toronto
Has anyone recovered from ALS and how did you recover?
 

ShiftKicker

Moderator
Joined
Mar 16, 2015
Messages
4,884
Reason
DX UMND/PLS
Diagnosis
06/2015
Country
CA
State
BC
City
Vancouver
Hello and welcome to the forum. Please feel free to introduce yourself and share a little bit of your story.

With regards to recovery from ALS- Dr R Bedlack, has looked into this and documented the few folk who have experienced what appears to be a reversal. If you search online for "ALS reversals" and Dr Bedlack's name, or the "R.O.A.R. program", you will see what has been studied.

Once again, welcome to forums.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
11,745
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
Shiftkicker directed you to the most reliable source of validated recoveries. If you search online you will find people claiming recovery but generally it will obvious they have a financial agenda. aLS plateaus are fairly common and temporary partial reversals ( improvements) not unknown. We have no regular members here who have claimed recovery.
 

Clearwater AL

Very helpful member
Forum Supporter
Joined
Aug 28, 2013
Messages
2,294
Reason
PALS
Diagnosis
12/2016
Country
US
State
NC
City
Get Real
Yes, Please feel free to introduce yourself and share a little bit of your story.
Some information of who and where you were diagnosed gives members
a better insight to help you in the future. We have Canadian members and
others familiar with ALS centers in Canada. Should you or have considered
a second opinion.

I've read other top ALS neurologists have questioned the cases of supposed
recovery or reversal.
 
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