Hi Jenn,
I have experienced some serious issues with cramps that I probably described here sometime. I begged my GP for something and his nasty nurse said for me to take motrin. I was already up to 12-16 motrin a day for soreness, so that wasn't working. Then I begged neuro for something and she gave me lortab of all things. Doesn't work for the cramps or the serious soreness, but does help with a good nights sleep. What I finally had to do: bedrest. I swear by it. I just stopped moving as much as I could for 24 hours. Not practical, I know. I was experiencing stretches of cramps; I would go for hours in one day, with more than 20 killer cramps per hour. Sometimes they started and continued during the night. Those were the worst. I would have days on end where I would have the nasty long lasting and repeating cramps for hours at a time (the cramps would last for like 30 seconds to a minute, but would keep repeating over the course of a few hours). Out of desperation and exhaustion, I finally just lay down on the couch and didn't get up except for bathroom visits. Three times I have just imposed bed rest, and it seemed like it worked....the episodes stopped and now I just get the regular garden variety of cramps here and there during the day, and very rarely at night.
I was going to try and get Baclofen for the stiffness/soreness I experience but am not so sure now that I read others' posts. I have found the cramps return when I am too physically active for a few days on end. If I rest alot I keep them at bay. Coincidence? Maybe...but working for now! Probably didn't help but wanted to share-
Lydia (latest diagnosed: BFS and low B12)