hwbissegg
Member
- Joined
- Jul 1, 2006
- Messages
- 14
- Reason
- PALS
- Country
- US
- State
- Utay
- City
- Salt Lake City
Hi. My name is Heather and I was diagnosed with ALS about a month ago. I'm only 27 years old so it is extremely odd for me to have this horrible disease. I was just wondering if there are any other females (or males) in the same boat as me.
My symptoms started about a year ago. I've been an athelete all my life and played collegiate volleyball. I now coach volleyball and play in rec leagues...that's where I started noticing differences in my strength and jumping abilities. Then the twitching started. Of course I had numerous tests done and everything was normal, including an EMG. My left foot started to drop in November and I was limping by Christmas. I had MRI's that ruled out MS and finally got another EMG...this one showed abnormalities. The doctors treated it as an autoimmune disorder for 3 months, but it didn't help. That and the fact that I had developed some upper motor neuron symtoms led to the diagnosis.
So here I am, just 27, with a disease that nobody can do anything about. But I tell you what, I'm gonna kick the hell out of it! I'm determined not to let this get me. My husband and I haven't started a family yet and we aren't going to let this deter us...we are still trying to have kids.
Anyhow, this is my story. I have a great husband, family, and friends to help me out. And for that I feel extremely lucky!
Thanks for listening!
Heather B.
SLC, UT
My symptoms started about a year ago. I've been an athelete all my life and played collegiate volleyball. I now coach volleyball and play in rec leagues...that's where I started noticing differences in my strength and jumping abilities. Then the twitching started. Of course I had numerous tests done and everything was normal, including an EMG. My left foot started to drop in November and I was limping by Christmas. I had MRI's that ruled out MS and finally got another EMG...this one showed abnormalities. The doctors treated it as an autoimmune disorder for 3 months, but it didn't help. That and the fact that I had developed some upper motor neuron symtoms led to the diagnosis.
So here I am, just 27, with a disease that nobody can do anything about. But I tell you what, I'm gonna kick the hell out of it! I'm determined not to let this get me. My husband and I haven't started a family yet and we aren't going to let this deter us...we are still trying to have kids.
Anyhow, this is my story. I have a great husband, family, and friends to help me out. And for that I feel extremely lucky!
Thanks for listening!
Heather B.
SLC, UT