stephie
Distinguished member
- Joined
- Mar 28, 2008
- Messages
- 117
- Reason
- CALS
- Diagnosis
- 01/2007
- Country
- US
- State
- mn
- City
- coon rapids
I want to thank everyone for these wonderful posts. I have been feeling terrible lately because I have been impatient and short with my husband. I try so hard to be patient and upbeat, but my frustration is getting the better of me. My husband was diagnosed 3 years ago and can not use his arms or legs and has limited speech and swallowing. He was a healthy 39 year old when he was diagnosed, so it has been extremely hard for him to give up the things he loved to do. I work full-time,we have two children, and we do not yet have home care. It is physically very hard for me to take care of him by myself, but the hardest part is the constant little things- trying to understand everything he says when he won't use the dynavox, wiping his eyes, wiping his nose, adjusting his chair, getting him things, etc. I know that he deserves to have someone do all of these things for him without getting upset, but I just can't seem to accomplish that anymore. It makes me feel so much better to know that there are other people out there who have the same feelings of frustration and guilt as they struggle to do the best for their PALS!