Sorry My Pals And Cals Friends
First of all, I would like to tell you all how much your care and concern has Humbled my Heart and Soul. I haven't forgotten any of you. You are like a very special part of my Family. I Love you wonderful people.
As far as Tim, he is doing pretty good under the circumstances. I have removed him off hospice about three weeks ago. We were shooting for therapy. One time they came out and gave him therapy. We haven't heard from them since. So on friday when Me and Ronald took to Tim to the Doc. I told her about it. Well, he will start therapy at an out patient clinic. His first is Tuesday. I will be with him also my brother Ronald.
In the past three weeks I have gotten him a new comfortable Manual Wheel Chair. (he already has a power chair, no van to use at this point) we have a Nebulizer Machine, Neck Brace, Special Shoes, He went to Sleep Evaluation Clinic
for Sleep Apnea ( he quit breathing 45 times an hour) he now has C-PAP C Machine.
I should have the Caugh Assist Machine Tomorrow. Then have a RT come out. So you can see how busy we have been. Over all he is doing good. He has a good sense of humor and that will to live coaching I do with him.
He said when he found out you all were trying to get in touch with me, that yall hang in there just like him. He wants to Live.
As far as me, I have had bad spasm flare ups in my back rib cages in the last two weeks and cramps in my calves and feet. Today I was sitting in my chair on our deck and the Fasciculations were constant in my calves. My muscles and bones hurt fom the top of my head to my feet. I felt as if I had ben beaten. But I am tired of chasing Doctors for answers. I told my husband I am not going back unless it severly changes. Just go to the doc for my Ear Disease.
Also I have been helping a friend of mine out in her business. I go atleast three half days a week. I previously was a Bookkeeper and she has major problems with her program. I don't know how long I will be doing this.
Also, I am working on something very Special for ALS. I can't say what it is yet. I will let you all know once I have the time to accomplish it with everything else I am working on.
As you know I am dedicated to ALS. It is my calling and Mission to Succeed!
If you want my personal E-Mail just PM me and I will give it to you. I haven't been on my computer much in over a week. But I will be back.
You guys mean a lot to me. Is there anything new I should know about?
Sincerely,
Lorie:-D